Sept. 23, 2019

He was able to contort himself into various positions as part of a dance routine. I told him he was doing all the things I wish I could do (sitting in my scooter). He said he lived in the next apartment house over, and this was the first time he had ever practiced out on the street. “Well keep at it,” I said. “You’re really very good.”

He walked towards me and shook my hand.

Then I headed out to the park.


The scooter thing is more complex than you’d think because very few people in this place have them, and I think one of the requirements is being able to walk with a Rollater (at least). And if you travel around in a wheelchair or scooter, you get flak from the people who are trying to “help you.”

“Use it or lose it.” Is the most common refrain.

And it is true.

On the other hand, I’ve been through a solid month of PT at Cardinal Cooke, which was very good, and came home from there and had a second stroke on the other side.

Then, with the help of a health care aide I managed to go three days a week to a PT place a block away, but I was still getting weaker.

Then three months of PT here. I figure that I’ve been through 6 months of PT and now OT and I don’t see much improvement in my legs. My core is getting stronger, but that is because my current OT knows what she’s doing and works in the neurology dept. at Sinai.

This place is big on PT but they have the smallest room in the Castle. They try to make do with what they have but they only have one bike, one more is upstairs but it has been broken for months, and a sort of parallel bars thing so you can hold onto something while you do the exercises.

But right next door is the Chapel which is a large room, and is empty except for Saturday night. Instead of spending money on making a real rehab room, they redid the entire dining room since this is the main selling point of the Castle.

Well that’s all for today. I found out that yesterday was Alzheimers Day. The blue coats are coming around now.