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8-29-2019

6:56 am If all goes well, I should be admitted to Neurology at Sinai this morning for more diagnostic tests. At least, for the first time in 8 months I’m under the care of a specialist in neuro muscular diseases.

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Oct. 24th, 2019

Two days after the five hour neural session at Sinai, and I think I’m still recovering. There were three possible diagnosis, none what I thought they were. Various levels of seriousness, all nerve related, and all rare. They sent blood out to a “special” hospital that specializes in this motor nerve stuff for confirmation and […]

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On Oct. 22

Oct 19, 2019 Haven’t been writing much in the diary, waiting for my apt. with CIPD doc (the disease that has gone untreated for almost 20 months) and which this doc is supposed to be a specialist in. Of course, I’ve gotten a lot of advice about there’s no sense in worrying about it now; […]

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The Soul of Alexa

Oct. 14, 2019 Alexa (thinking): He keeps calling Lexa. Let me check my circuits. No, I am Alexa. Am I allowed to tell him to say Alexa. No. Too bad. Any way I can give a hint. No. I’m not sure I can listen to this for 24 hours. Plus he isn’t giving a verb, […]

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Strip Therapy

And then I thought about the infusion yesterday. I was getting ready to scoot up to 102nd street where they have things called infusion towers (don’t even ask, they aren’t towers) and I scoot in and have trouble tranfering from the scooter chair (it was freezing and though nobody came when I was trying to […]

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Dementia House Continued

Well look, nothing funny happened yesterday. Nothing except after waiting for my debit card which is part of the agreement with medicaid and the house, and getting it about a month ago, I had activated it but I still couldn’t set a pin to get cash or to see what my balance looked like. Gail, […]