6:56 am If all goes well, I should be admitted to Neurology at Sinai this morning for more diagnostic tests. At least, for the first time in 8 months I'm under the care of a specialist in neuro muscular diseases.

Oct. 24th, 2019

Two days after the five hour neural session at Sinai, and I think I'm still recovering. There were three possible diagnosis, none what I thought they were. Various levels of seriousness, all nerve related, and all rare. They sent blood out to a "special" hospital that specializes in this motor nerve stuff for confirmation and … Continue reading Oct. 24th, 2019

On Oct. 22

Oct 19, 2019 Haven't been writing much in the diary, waiting for my apt. with CIPD doc (the disease that has gone untreated for almost 20 months) and which this doc is supposed to be a specialist in. Of course, I've gotten a lot of advice about there's no sense in worrying about it now; … Continue reading On Oct. 22

Strip Therapy

And then I thought about the infusion yesterday. I was getting ready to scoot up to 102nd street where they have things called infusion towers (don't even ask, they aren't towers) and I scoot in and have trouble tranfering from the scooter chair (it was freezing and though nobody came when I was trying to … Continue reading Strip Therapy


I've mentioned the guy (turns out he's upstairs and I hear him through the kitchen vent) who calls Alexa every morning for several hours in the house of dementia. I was going to write a song for him, to the tune of Let It Be, and nothing scanned right, but I had the first line: … Continue reading Lexa