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blog diary

12-14-2019

My monthly regimen of IG infusions are supposed to start this Monday (today is Saturday). Last night at around 9pm a big box arrived with the IG. It didn’t say that it had to be refrigerated and hopefully it doesn’t. It arrived with it’s own infusion pole and a pack of instructions. They ask you […]

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blog

So What’s Next

More medical stuff. I’ve already explained in previous posts what I’ve got and what I’m going to be treated for. This is now confirmed. I am going to get 5 infusions of IG (immunoglobulin) in a row, once per month, starting this Monday, here at the Castle, by an outside company. In conjunction with that, […]

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diary

Dec 11 2019

Music, comedy and good literature plus a natural curiosity about stuff around and inside me. That was how I answered the neuro psychologist that visited me every day in the hospital. She wanted to know how I seemed to be coping with all the crap that had happened to my health while still keeping in […]

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blog diary

What I Got

Steve R. asks what exactly was the diagnosis, what does IVIG mean and a few other things that I should clear up if I haven’t already. The diagnosis was that it was a combination of Multi-focal Motor Neuropathy with some CDIP (chronic inflammatory demyelinating polyneuropathy)¬†thrown in for good measure. Not being a doctor or even […]

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blog diary

The Relativity Theory

I suppose everything is relative. The first thing I noticed upon returning to the Castle was the guy in the apt above me screaming at Alexa for hours and instead of annoying me it felt like home. Weird. It’s 7:30 am and he’s already been at it for two hours. He began while it was […]

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blog diary

dec 7 2019

jeez. now i’m supposed to write. so much happened in the last 5 weeks. ever been in a hospital for 5 weeks or longer? on the one hand they try to save you with the smartest doctors, best technology, et. al. On te other hand they try to kill you by causing sleep deprivation and […]