Dec 11 2019

Music, comedy and good literature plus a natural curiosity about stuff around and inside me. That was how I answered the neuro psychologist that visited me every day in the hospital. She wanted to know how I seemed to be coping with all the crap that had happened to my health while still keeping in … Continue reading Dec 11 2019

What I Got

Steve R. asks what exactly was the diagnosis, what does IVIG mean and a few other things that I should clear up if I haven't already. The diagnosis was that it was a combination of Multi-focal Motor Neuropathy with some CDIP (chronic inflammatory demyelinating polyneuropathy)¬†thrown in for good measure. Not being a doctor or even … Continue reading What I Got

dec 7 2019

jeez. now i'm supposed to write. so much happened in the last 5 weeks. ever been in a hospital for 5 weeks or longer? on the one hand they try to save you with the smartest doctors, best technology, et. al. On te other hand they try to kill you by causing sleep deprivation and … Continue reading dec 7 2019

8-29-2019

6:56 am If all goes well, I should be admitted to Neurology at Sinai this morning for more diagnostic tests. At least, for the first time in 8 months I'm under the care of a specialist in neuro muscular diseases.

On Oct. 22

Oct 19, 2019 Haven't been writing much in the diary, waiting for my apt. with CIPD doc (the disease that has gone untreated for almost 20 months) and which this doc is supposed to be a specialist in. Of course, I've gotten a lot of advice about there's no sense in worrying about it now; … Continue reading On Oct. 22