6:56 am If all goes well, I should be admitted to Neurology at Sinai this morning for more diagnostic tests. At least, for the first time in 8 months I'm under the care of a specialist in neuro muscular diseases.

Oct 19, 2019 Haven't been writing much in the diary, waiting for my apt. with CIPD doc (the disease that has gone untreated for almost 20 months) and which this doc is supposed to be a specialist in. Of course, I've gotten a lot of advice about there's no sense in worrying about it now; … Continue reading On Oct. 22 →

Oct. 14, 2019 Alexa (thinking): He keeps calling Lexa. Let me check my circuits. No, I am Alexa. Am I allowed to tell him to say Alexa. No. Too bad. Any way I can give a hint. No. I'm not sure I can listen to this for 24 hours. Plus he isn't giving a verb, … Continue reading The Soul of Alexa →

And then I thought about the infusion yesterday. I was getting ready to scoot up to 102nd street where they have things called infusion towers (don't even ask, they aren't towers) and I scoot in and have trouble tranfering from the scooter chair (it was freezing and though nobody came when I was trying to … Continue reading Strip Therapy →

I've mentioned the guy (turns out he's upstairs and I hear him through the kitchen vent) who calls Alexa every morning for several hours in the house of dementia. I was going to write a song for him, to the tune of Let It Be, and nothing scanned right, but I had the first line: … Continue reading Lexa →

Everything on the new phone (a40) is trying to either get me hooked on some new tech or buy something. Both adding up to the same thing. What the hell is Bixby? The last Bixby I recall was from My Favorite Martian and the dumbest show of all The Hulk. Then it sticks all the … Continue reading Good Morning →

My dreams don't take anything into reality. In the latest dream, I showed up to meet my earliest mentor, Roger Larson, who I met at the Mosholu Center when I was 13. Mosholu Center was off of Gunhill Road, near Montifoire hospital, not that that means anything to anyone who wasn't going there. But my … Continue reading War Correspondent →

From the time I began photographing people I was drawn to the struggles disabled people have with everyday life. 23rd Street For ten years I photographed, or at least watched this man go painful step by step up the 23rd street station stairs. I came from a family that took me at a very young … Continue reading The Struggle to Live and be An Artist →

I had a hard time getting out of bed this morning. Somehow I managed to work myself into a position where I couldn't get upright. I mean I was lying on my back, and my lower spine was killing me and I couldn't get my trunk perpendicular to the bed, even pulling on the bed … Continue reading Anti Social Media →

If you don't read any of the depressing stuff below, at least read this: My phone died last week and I lost most of my contacts. If you want to stay in touch email me your phone number so I can return you to my contacts. It is getting difficult to keep my sense of … Continue reading Breaking Bad →