I suppose everything is relative. The first thing I noticed upon returning to the Castle was the guy in the apt above me screaming at Alexa for hours and instead of annoying me it felt like home. Weird. It’s 7:30 am and he’s already been at it for two hours. He began while it was […]
Category: diary
jeez. now i’m supposed to write. so much happened in the last 5 weeks. ever been in a hospital for 5 weeks or longer? on the one hand they try to save you with the smartest doctors, best technology, et. al. On te other hand they try to kill you by causing sleep deprivation and […]
6:56 am If all goes well, I should be admitted to Neurology at Sinai this morning for more diagnostic tests. At least, for the first time in 8 months I’m under the care of a specialist in neuro muscular diseases.
Oct 19, 2019 Haven’t been writing much in the diary, waiting for my apt. with CIPD doc (the disease that has gone untreated for almost 20 months) and which this doc is supposed to be a specialist in. Of course, I’ve gotten a lot of advice about there’s no sense in worrying about it now; […]
Oct. 14, 2019 Alexa (thinking): He keeps calling Lexa. Let me check my circuits. No, I am Alexa. Am I allowed to tell him to say Alexa. No. Too bad. Any way I can give a hint. No. I’m not sure I can listen to this for 24 hours. Plus he isn’t giving a verb, […]
And then I thought about the infusion yesterday. I was getting ready to scoot up to 102nd street where they have things called infusion towers (don’t even ask, they aren’t towers) and I scoot in and have trouble tranfering from the scooter chair (it was freezing and though nobody came when I was trying to […]
